Looking back at Hallowell’s reseach, according to the non-carriers genetic responsibility is demonstrated by taking an active approach: getting tested, disclosing the genetic information and making reproductive desicions accordingly.
On the other hand genetic determinism, which was demonstrated by many of the carriers is seen as a form of passivity in case of risk.
(image: Fatalism by [...]
So do contrasts in perception of responsibility depend upon the level of involvement? Those who experience it first hand as carriers, (or even non-carriers within a carrier family) seem to see a wider spectrum to the debate, while non-carriers or are more judgemental and build a more precise definition of their view on right and [...]
Also tagged carrier, moral, perception“Non-carriers also sometimes express guilt at not sharing their families’ risk of disease, thereby demonstrating responsibility through compassion.” (Arribus-Allyson et all 2008)
Back with the guilty survivor, and now responsility is attributed to what we would normally consider to be simply a kind, humane emotion. But can compassion really be seen a form of responsible behaviour??