The testimonials of carriers and non-carriers reveal a definition of responsibility derived from a desire to portray oneself as a responsible parent. Looking at the differences between the reaction to positive or negative test results, it seem that the need to align the parent’s perception of self with a defensible definition of responsible behaviour triggers [...]
Also tagged creative, selfThe genes or mutations can be seen as bonding agents, fusing the individual into the group. However, being identified as part of this group biologically can diminish one’s autonomy over their body, privacy and life decisions. Genetic diagnosis gives us a glimpse of potential futures (Hallowell, et all 2006) and as a result can alter [...]
Also tagged autonomy, future, identity, selfWith knowledge of genetic information, what is the family narrative based upon? Does the family’s sense of identity become entwined with an experience of illness?
An ancestry chart traditionally accounts the family history of marriages, births and deaths. The Price family tree follows the story of the BRCA gene’s path throughout the generations.
A family identity constructed [...]