When one decides to get tested they normally have themselves and any existing or future children in mind. However if a mutation is discovered, they suddenly find themselves thrown into the position of both decision maker and messenger in relation to their extended family members.
Is revealing genetic information to the family a duty, a choice [...]
This term, coined by Richard Dawkins expresses a gene-centred view of evolution. The contention is that the genes that get passed on are the ones whose consequences serve their own implicit interests (to continue being replicated), not necessarily those of the organism.
In Dawkins theory, we cannot view the act of conception as replication of the [...]
Arribus-Allyson distinguishes between two forms of blame: internal states of the person (self-blame) or ethico-moral attributions to other persons (other-oriented responsibility). Self blame is intertwined with notions of guilt, however genetic other-oriented blame in the family sphere is more complex.
Holding one’s parents culpable for biological suffering has severe implications. Not only is this an action [...]
Going back to Hallowell’s accounts of non-carrier fathers, there was a strong representation of the idea that transmitting a mutation to one’s children is regarded as a personal matter. It may be unintentional, but it is constructed as blameworthy. However since carriers actually view themselves as unwitting participants, those who do transmit a mutation believe [...]
Also tagged blame, guilt“…irresponsibility is different from wrongness, and almost completely separable from the actual results of what one does. Acting irresponsibly involves the manner in which one makes a decision, considered in the light of possible outcomes of that decision, but not determined by what actually happens.” (Andre, Fleck, Tomlinson 2000)
Does responsibility rely on intentions? Can one [...]