When one decides to get tested they normally have themselves and any existing or future children in mind. However if a mutation is discovered, they suddenly find themselves thrown into the position of both decision maker and messenger in relation to their extended family members.
Is revealing genetic information to the family a duty, a choice [...]
Ethical questions around the disclosure of genetic information to family members can contribute to the nature versus nurture debate. A transmitted mutation is given by nature, but it is in being informed of its existence that behaviour may change.
Although genetic information is inherently familial, to expect it to be distributed between all family members is [...]
Looking back at Hallowell’s reseach, according to the non-carriers genetic responsibility is demonstrated by taking an active approach: getting tested, disclosing the genetic information and making reproductive desicions accordingly.
On the other hand genetic determinism, which was demonstrated by many of the carriers is seen as a form of passivity in case of risk.
(image: Fatalism by [...]
“…irresponsibility is different from wrongness, and almost completely separable from the actual results of what one does. Acting irresponsibly involves the manner in which one makes a decision, considered in the light of possible outcomes of that decision, but not determined by what actually happens.” (Andre, Fleck, Tomlinson 2000)
Does responsibility rely on intentions? Can one [...]