When one decides to get tested they normally have themselves and any existing or future children in mind. However if a mutation is discovered, they suddenly find themselves thrown into the position of both decision maker and messenger in relation to their extended family members.
Is revealing genetic information to the family a duty, a choice [...]
Ethical questions around the disclosure of genetic information to family members can contribute to the nature versus nurture debate. A transmitted mutation is given by nature, but it is in being informed of its existence that behaviour may change.
Although genetic information is inherently familial, to expect it to be distributed between all family members is [...]
“a man’s natural abilities are derived by inheritance, under exactly the same limitations as are the form and physical features of the whole organic world.” Francis Galton, Hereditary Genius, 1869.
The debate around the influence of nature versus nurture on behaviour has been researched for decades. Behavioural genetics experiments have ranged from twins and adoption studies [...]
Looking back at Hallowell’s reseach, according to the non-carriers genetic responsibility is demonstrated by taking an active approach: getting tested, disclosing the genetic information and making reproductive desicions accordingly.
On the other hand genetic determinism, which was demonstrated by many of the carriers is seen as a form of passivity in case of risk.
(image: Fatalism by [...]
With genetic transparency family secrets can no longer exist. By constructing a family according to biological knowledge, social structures centered around monogamy and fidelity are reinforced. Genetic screening performed to find possible mutations can also unintentionally function as a paternity test, thus revealing any illicit affairs and disclosing family secrets.
Does genetic knowledge acts as a [...]