Questions around the ownership of genetic information also relate to perceptions of autonomy and hierarchy within the family. A family as a group is made of individuals that are often not viewed or treated as equals. Perceptions of ownership are legally and culturally accepted within the traditional family structure.
What is the status of children? Do [...]
The right not to know is an intriguing concept in this information age. Can knowledge be damaging? And within the genetic moral code, can ignorance be bliss?
Once genetic information is revealed without request, the potential carrier has to deal with the implications of this knowledge while not having the time to emotionally prepare. The privilege [...]
As families and citizens are refigured in a ‘genetic network’ (Armstrong 1998) or through forms of ‘biosociality’ (Rainbow, 1996) the individual needs to find ways to define their autonomy to themselves and to society.
The spotlight on shared genetic material alludes to the biological association (Arribus-Allyson et all, 2008) suggesting not only anatomical, but behavioural similarities [...]
The genes or mutations can be seen as bonding agents, fusing the individual into the group. However, being identified as part of this group biologically can diminish one’s autonomy over their body, privacy and life decisions. Genetic diagnosis gives us a glimpse of potential futures (Hallowell, et all 2006) and as a result can alter [...]
Also tagged future, identity, narrative, self