The testimonials of carriers and non-carriers reveal a definition of responsibility derived from a desire to portray oneself as a responsible parent. Looking at the differences between the reaction to positive or negative test results, it seem that the need to align the parent’s perception of self with a defensible definition of responsible behaviour triggers a creative process.
This creative process revolves around constructing a narrative that would allow one to portray themselves as a morally responsible family member. Required narrative of either fatalism or active intentions are developed to suit the family’s genetic makeup.
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